Showing posts with label transplant. Show all posts
Showing posts with label transplant. Show all posts

Monday, June 6, 2011

Journal - Phone Call Follow-Ups

Okay, so it was last Wednesday when I got those phone calls from the Dr.’s office. There have been a couple of minor developments since then so here’s a quick update before I forget.
I had asked Elinore last week whether Dr. Feilmeier was planning to do both transplant and cataract surgeries at the same time. Elinore wasn’t sure and said she would check with the doctor. She called back the very next day and said that he is indeed planning to do both at the same time. That’s fine with me as long as there are no additional or increased risks involved. Getting both at the same time means, if everything goes well, I’ll be able to see much sooner, rather than having one surgery then having to wait a couple of months for the other. When I had my transplant back in 2004, I had excellent vision the very next day when the bandage came off, even though I had read that the vision would come in slowly as the new cornea healed. I’m not sure if cataract surgery requires a lot of recovery time or not, I’ll have to read up on that.
Then today I got a call from another lady at the doctor’s office, I think her name was Megan. Megan was calling to confirm, finally, that they did indeed get the ultrasound results from my visit to Dr. Halgren back in October. That’s good news because everything else was kind of on hold until that got resolved. Megan also told me that the next step will be to get some measurements taken of my eye. I’m not sure what this entails exactly, but the measurements are needed to determine the strength of the lens I will need. When I say lens, I’m talking about the actual lens of the eye, not the cornea or a contact or anything like that. The lens is inside the eye, and it’s where cataracts form. My lens will be removed and replaced with a new one. Unlike the cornea, the lens can be replaced with an artificial one. Megan said the measurements can be taken in Kearney and that someone should be calling me to schedule an appointment.
That’s all the news for now. Stay tuned.

Romans 2:7 to those who by patience in well-doing seek for glory and honor and immortality, he will give eternal life;

Romans 5:3-5 More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God's love has been poured into our hearts through the Holy Spirit who has been given to us.

Wednesday, June 1, 2011

Journal - Surgery Discussions

Today, I got a couple of phone calls from the doctor’s office in Omaha.
The first call was from Denise who is in the billing office. I had spoken to her a couple of weeks ago about how I would pay for my surgery. Medicare only pays 80%, and Denise said that would leave me with about $3000 to cover, with $1500 being due up front. She called today just to confirm that I was aware of how much money I would need to come up with, although I’m thinking that this time she said $1000 was due up front. Anyway, I told her that I was aware.
The second call came a few minutes later. This one was from Elinore who is the transplant coordinator. There are a lot of different things that need to happen before surgery, and Elinor’s job is to make sure they all happen. Elinore told me a lot about how the process works, some of which I knew from my transplant seven years ago, and some of which I didn’t.
She said that once the doctor is informed that there is a cornea available, they basically have five days to get it in my eye, and a lot has to happen in those five days. The cornea is shipped to the doctor in Omaha. The doctor sends it to a lab in Denver to be tested; a lot of tests have to be performed on the cornea to make sure it is healthy. Then the cornea goes back to Omaha for the surgery. Elinore also told me that there’s always the possibility that the cornea will not pass all the tests, in which case the surgery has to be called off until another cornea is available, something I had to learn the hard way seven years ago. I asked her why they can’t just wait until the cornea is cleared before they notify me, and she said it’s because the time-frame is so short. As soon as they know there is a cornea, they go ahead and schedule the surgery to make sure the necessary staff and facilities will be available. They also will notify me at that time to make sure I’m available. If they waited until the cornea was tested and cleared, there just wouldn’t be enough time to pull everything together.
Back on May 9th, when I saw Dr. Feilmeier in Kearney, he had told me they would probably do my cataract surgery first, and then the cornea later. Since Elinore was telling me all about the transplant and hadn’t mentioned the cataract, I asked her about that. I think that caught her by surprise a little bit, but she looked at the doctor’s notes and said it looked like he was planning to do both at the same time. She admitted that the notes were not perfectly clear, however, so she said she would check on that and let me know. I always thought it would make sense to do both since the only way to get to the cataract is through the cornea anyway, but when I asked the doctor about that in May, he said the cataract is handled through a small incision on the outer edge of the cornea, rather than removing the cornea completely. That was an interesting bit of information. It would be nice to get both things done at the same time, but I suppose the more things they mess with, the more chance there is of complications. Well, I’m willing to trust the doctor’s judgement on that.
I asked Elinore if the surgery would be in the morning and she said there was really no way to tell. I was wondering because if it’s early, we’ll probably have to go to Omaha the day before. I know we’ll have to spend the night the day of the surgery, because I have to go back the next day for a follow-up. After that, my follow-ups can be in Kearney unless the doctor sees something he doesn’t like. They have a doctor in this area every two weeks so it just depends on if he’s comfortable letting me go that long.
And that’s about it. Elinore is sending me maps and information. She said that sometime before surgery I’ll have to get a physical, but they’ll let me know when it’s time for that. Not a bad idea since I haven’t had one for about 20 years. Oh, she also told me that there’s a hotel near the surgical center that gives a discounted rate to surgery patients, although at $45 a night the rate didn’t sound that special to me. Still, it would be nice to be close and not have to do a lot of driving around in the city. Hey, if the surgery goes well, maybe I can drive us home! Just kidding Mom, I knew that would get a rise out of you. I don’t even have a license.
Well, I think that’s about it. It’s starting to sound like this might actually happen. That’s a little scary for a lot of reasons.

Luke 11:34-35 Your eye is the lamp of your body. When your eye is healthy, your whole body is full of light, but when it is bad, your body is full of darkness. Therefore be careful lest the light in you be darkness. ESV

Proverbs 20:12 The hearing ear and the seeing eye, the Lord hath made even both of them. KJV

Wednesday, May 11, 2011

Journal - Another Doctor Visit

On Monday, I had an appointment with Dr. Feilmeier (pronounced file-myer) at the Kearney Eye Institute. Dr. Feilmeier’s office is actually in Omaha, but he comes to Kearney once a month since there aren’t a lot of cornea specialists around here. Joni and I arrived in time for the 10:30am appointment.
At about noon, we finally got to see the doctor. He took a quick look at my eyes through the microscope, check the pressure, and did all the basic things that happen during any visit to the eye doctor. Then we talked about surgery for a few minutes, and some of the risks involved. He told me that any surgery I get would be done in Omaha, and probably the first couple of follow-ups, but anything after that could probably be handled in Kearney. I already knew that, but he did tell me a couple of things I didn’t know.
First, he said they would probably do cataract surgery first, then the cornea transplant at another time, rather than doing both at the same time like I thought. I assumed that since they have to go through the cornea to get to the cataract, they would just go ahead and do the transplant at the same time. Instead, he told me that the cataract is handled through a small incision on the outer edge of the cornea, rather than removing the cornea completely.
Secondly, I learned that one of Dr. Feilmeier’s associates also visits this area once a month, at an office in Grand Island. The two doctors come on a rotating schedule so that one of them is here every two weeks. That made me feel a little better because I was worried about only having a doctor here once a month in case there are problems after surgery.
All in all, it was a good visit. A positive visit as you might say. I was only with Dr. Feilmeier for about 15 minutes, but already I liked him better than Dr. Halgren in Omaha. He was just better at explaining things and letting me know how everything would be handled. He said he would go ahead and put me on the transplant list since there is about a two month wait. In the meantime, he will be gathering my records from Dallas and Omaha. If he decides that any further tests need to be done, they’ll contact me for an appointment, otherwise the next time I hear from them will be when they’re ready to schedule surgery.
Oh, there was one other thing he mentioned. When we were talking about surgery, I asked if I could have a bionic eye, knowing full well there is no such thing. What he mentioned was a type of prosthetic cornea that they sometimes use now in patients that have had multiple rejections. He didn’t go into great detail, but it has something to do with a natural cornea being layered with a plastic lens. I’ll have to look into that and see if I can learn more.
Anyway, I’m scheduled to see Dr. Feilmeier again on August 11, but I may very well hear from his office sometime before that if he decides we can go ahead with surgery. Keep me in your prayers!

2 Peter 3:8-9 But do not overlook this one fact, beloved, that with the Lord one day is as a thousand years, and a thousand years as one day. The Lord is not slow to fulfill his promise as some count slowness, but is patient toward you, not wishing that any should perish, but that all should reach repentance. ESV